We're all about to die!!! We are fighting with all our strength! But if it still happens this way, please take care of our children! Remember them in your prayers, inquire about where they are and how their lives are going! We would do the same without a doubt! - Projects - Сhernovetskyi Fund

Chernovetskyi Charity Fund

We're all about to die!!! We are fighting with all our strength! But if it still happens this way, please take care of our children! Remember them in your prayers, inquire about where they are and how their lives are going! We would do the same without a doubt!

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August 28, 2023
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Could it be that these adorable children, just like their once healthy and loving father Gela and his brother Ramin, have inherited this terrible genetic disease from their late grandfather? Are they too destined for a slow and agonizing death? UPDATE!!! The Chernovetskyi Fund has already contributed 26,000 lari from their side, and we're almost there, friends! With your support, we believe we can save the family from death!
Charity number:
Donated:
$ 25,314.4
( 3,681 Donors )
Project completed!

Update!!! The Chernovetskyi Fund has already contributed 26,000 lari from their side, and we're almost there, friends! With your support, we believe we can save the family from death!

We're all about to die!!! We are fighting with all our strength! But if it still happens this way, please take care of our children!
Remember them in your prayers, inquire about where they are and how their lives are going! We would do the same without a doubt!

REPOST RIGHT AWAY, MY GOOD MAN! HELP YOUR FRIENDS TO GET CLOSERTO THE WORK OF MERCY!

Could it be that these adorable children, just like their once healthy and loving father Gela and his brother Ramin, have inherited this terrible genetic disease from their late grandfather? Are they too destined for a slow and agonizing death?

"31-year-old Gela can hardly stand on his feet.  His brother Ramin assists him and knows that the same will happen to him soon... What a nightmare!"

"We're all about to die!!!" cries and laments the mother of the children and wife of Gela, Tamara. "The fate of Gela and Ramin rests solely on a missing $25,000 – a sum we don't possess! We've sold every valuable thing we had, reached out to all our acquaintances, borrowed as much as we could. Our family's life is still in jeopardy!" This is not a cry for help, it's a plea from a desperate mom and wife!

If we don't collect the remaining $25,000 by September 14th (by which time the Georgian Ministry of Health contributes a small portion of money - $14,000) - and we have nothing left to sell, and our friends have already given us all they can - my beloved husband, the father of our little ones, and his younger brother will die in excruciating pain. This pain cannot be eased by pills or injections. Each moment that slips by brings them a step closer to certain death. If we don't act now, it might be too late. Whose conscience will bear the weight of their unbearable suffering? Who will be held accountable for their torment and their deaths filled with convulsions? We cannot remain blind to this sorrow... these innocent children stand in line for doom after their father and uncle!

In just a few years, their home, where guests always gathered, where love and harmony reigned, has turned into a house of horror, death, and unending suffering.  All the men in this family are afflicted by a dreadful genetic disease that has already claimed the lives of their father and elder brother, and now, it seeks to take Gela and Ramin.  Huntington's chorea – the very name of the disease is terrifying.  To help you fully grasp what this is – it's torture, and not just for the afflicted, but for their loved ones as well.  The disease literally devours the brain of an entirely healthy person - they become irritable, angry, unable to find calm, constantly jerking and waving their limbs... And their face – their face changes beyond recognition - only name and surname remain from once sweet and kind person. And the most horrifying aspect is that it is impossible to break this vicious circle. 

That's how quickly Gela's expression changes. He can sit calmly, and then suddenly jump up and start destroying everything... And yet, he can't take a step without assistance

- Tamara, looking at all this horror, I can't imagine what to ask you, I can't find the words... 

Tamara: My husband and his brother are simply fading away before our eyes!  The countdown is not in days, but in minutes!  With every passing second, cells of their brain are dying! Without surgery, both of them will die - just as their father and older brother did not long ago...

- Could you provide us with more details about the disease you're talking about?

Tamara: It's a genetic disease – Huntington's chorea, you probably haven't heard of it!  Four years ago, my husband started behaving strangely, experiencing insomnia. When he did manage to fall asleep, he would thrash his legs and arms, which could have seriously harmed me or our little son.  Upon waking up, he wouldn't remember anything. Then he started making repetitive, incomprehensible movements with his hands and feet, almost like dancing. His gait became strange. I sounded the alarm, and we spent a long time going from doctor to doctor. I won't go into the details of how many offices we visited, but we finally found out that my husband has a genetic disease that is "eating away" his brain. Disability awaits him tomorrow, and death is not far off in the near future!

"And the children remember his love, care and the warmth of his hands and still cling to him”

- Is there really no way out?

Tamara: The only way out is surgery, or more precisely deep brain stimulation. This procedure won't cure him completely, but it will slow down the destructive process and prolong his life. For me, this means everything, as we have two little ones who need their father! And you know, what I fear the most is that this disease could affect my children too!  When I realize that, I feel like I want to die.

"I'm not afraid of you, Dad"

- Is there any way to prevent this?

Tamara: The doctors who diagnosed my husband and his brother said that children need to be tested and undergo analyses.  The first genetic test should be taken at age 6, then at 15, 19 and 25. And only after all of this, if the disease isn't detected, I can breathe a sigh of relief. And now every movement of my children alarms me. Even when they're asleep, I watch over them. "Why did he move his leg, why is she breathing unevenly...?"  I know it's turning into paranoia, but what to do? What can I do? If my children also received this “gift”, I already know the scenario of how their life will develop... but that's not what matters right now.  I still have a few months to get the tests done for my son. He just turned 6 on August 15th. And my daughter is only 4 years old. 

Daddy, will you become a good boy soon and buy us gifts again?

- Daddy, will you become a good boy soon and buy us gifts again?

Demetre (6 years old): This year, Daddy didn't even give me a cake. He used to be nice and always brought us lots of gifts. But now he's lying down and waving his hands. Sometimes I'm so scared of him that I cry.

Dea (4-year-old): And I'm not scared, I cuddle him.  Like this!  "Good Daddy, Daddy's a good boy."

Gela lies down most of the time, and there should always be someone with him. I can imagine how it feels for his brother; he understands that he'll become helpless soon too

- Does he not get up from the bed at all?

Tamara: Every movement is a tremendous struggle for my husband. He can't eat on his own, and - I'm sorry to say that - we help him in the bathroom together with my mother-in-law, supporting him. Breathing is difficult for him; he might choke and struggle to breathe at any moment. Not only is he as helpless as a child, but he also has no control over himself. He becomes aggressive, lost, and he constantly curses. In those moments, he gathers some sort of strength from somewhere and smashes everything around him. Oh, I don't even know how to describe all of this to you... His mother, Nazi, a saintly woman, sits by his side all the time and cries. She says it somehow makes her feel better. Can you imagine what she's going through? She buried her husband, then her son, and now she's watching death approaching for Gela and Ramin!"

Gela before the disease and Gela now - they are two different persons!

- What was he like before he got ill?

Tamara: You know, it's so frightening to see a person who was such a caring and loving father, husband, son, someone who worked tirelessly just yesterday. He took care of me, he supported me so much and cared for me. I'm a sick person myself; after giving birth to our son, they had to remove my gallbladder, and there were complications, six surgeries. I couldn't walk, and in the midst of stress, I developed epilepsy.  But he... He didn't leave my side for a moment. There was so much warmth and love; he carried me in his arms.  I had a year and a half of being the happiest woman... and now, he can go days without saying a word, or he'll say something that feels like a dagger in my heart.  But I know, it's not him, it's his disease.  Sometimes, I imagine that some sort of demon has taken over his mind and is controlling him.  There's really nothing left of the old Gela..." 

"I was the happiest woman... well, so what if this happiness lasted only a year and a half?"

- What could have triggered this terrible disease?

Tamar: This disease is very rare - it’s transmitted genetically through the male line.  Because of this, my father-in-law died young, but at that time, no one understood the cause. They thought heavy labor killed him. And when the same symptoms – insomnia, involuntary movements – appeared in my husband's older brother, we went to a doctor. They diagnosed him with psychological problems, and no one tried to dig deeper for the truth.  Two years later, he fell ill, and two years after that, he was gone. All those years, my mother-in-law cared for him like a baby.  Just look at her – she's devastated!

A genetic disease claimed the lives of Gela and Ramin's father and older brother

- Did you know anything about this disease before marriage?  How did you meet your husband?

Tamar: We were introduced in a traditional way - our parents arranged it. We were engaged, dated for six months, visited each other's homes, and then had a beautiful, wonderful wedding... And you know, I'm grateful to God for this choice. My Gela is an amazing person, a wonderful husband and father.  His younger brother is not in such a severe condition yet, but for two years now, he hasn't been able to sleep. He has the same involuntary movements, he's withdrawn and irritable.  And he knows, he realizes what will happen to him in a few months. 

A grief-stricken mother can't utter a word, she only weeps

- Have you addressed anyone for help? 

Tamar: The state partially financed us, with the help of relatives, friends, neighbors, we collected some more money, but still, we managed to collect only half of the required amount. And now all hope is on you and on kind strangers - the friends of your Fund. I know that we can't completely cure my husband, but his life will become significantly better.  His sleep will normalize, aggression will subside, involuntary movements, breathing problems will go away - essentially, he will start living again. I understand that neither my husband nor his brother will be able to work, and I'll continue to carry the burden, but believe me, it's worth it! I don't need wealth; the only thing I want is for my children to have a father, for him to be alive... and for our family to finally find peace and tranquility. I will do everything in my power, and I'm ready to take care of him until the end of my days.  And don't think that it's only the children keeping me here; I remember well how he supported me when I needed help, and I will never forget that." 

Gela can't even drink water by himself

Friends, today we're talking about saving an entire family. Just imagine what it's like when a person who was smiling at you just yesterday, who was the closest person in the world to you, transforms before your eyes into a monster and succumbs to a slow death.  When you can't recognize the traits you love in him, living in memories and trying with all your might to save him? A terrible tragedy has befallen the Kharabadze family. A dreadful disease is taking away one after another the people who not long ago were living full lives, loving, working, and making plans for the future.  But it's in our power to change their terrible fate, and with our joint efforts, we can defeat this dreadful fate.

For the young people, Ramin and Gela Kharabadze, there is a chance for salvation, but the amount required is beyond reach for a kind, humble Georgian family.  It's hard for everyone right now, but when we imagine that tomorrow, two little ones could be left without a father, all of our hardships recede for a moment. Each one of us can contribute to saving this family.

If you are willing to visit this family and help them in person, here is their address: Ozurgeti District, Village Naruja.

Every time you can help someone, just do it, and rejoice that God answers someone's prayers through you!

We are sure that all together we will manage to save them from imminent death.

Please don’t forget to repost our story. Let your friends know about the grief of this family! It’s extremely important!

Friends, there is one more request: if you know about the misfortune of a neighbor or friend do a godly deed, drop us an email at: office-fsp@fsp.ge

Our Fund’s accounts are:

  - In Bank of Georgia #GE42LB0115113036665000

  – In TBC Bank #GE15TB7194336080100003;

  – In Liberty Bank #GE42LB0115113036665000;

  (Purpose: The Kharabadze family)

You can also transfer money from our website: TБC Bank (GeoPay), Bank of Georgia (e-commerce), Liberty Bank (PayGe), PayPal.

It is also possible to transfer money from TBCpay, ExpressPay and PayBox (OPPA) terminals. Find our Fund under "Charity" section (you can read more about rights and responsibilities of the Fund following the link https://goo.gl/GY2Gus).

We have already helped thousands of disadvantaged people! Let’s support this family too! And who knows, maybe someday we ourselves will need the help of strangers! Life is always unpredictable!

Even if you dial once this special number, it might save someone's life: 0901 200 270! God bless you!



Tags:
#Ill adults

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