Nikoloz was born with this terrible condition 15 years ago, and every day since has been a living nightmare. He cannot talk. He can only make a few sounds. The poor boy can’t even close his mouth properly. And even when he manages to do so, it’s only for a couple of minutes – then the two tongues push it open again. It’s heartbreaking. It’s worse than a nightmare.
And this is not the only issue he faces. There’s what looks like a hump growing on his back. He suffers from intense spinal pain. Nikoloz was also born with a severe congenital heart defect.
His first heart surgery was done when he was a newborn. The second and third were performed when he was five and seven. But the most terrifying part is that Nikoloz was born without an atrial septum, and his heart has only three chambers instead of four. This means oxygen and carbon dioxide mix together in his blood. His life is constantly hanging by a thread, and his heart could stop at any moment. Oh Lord, please don’t let this tragedy happen to the Berberashvili family. Nikoloz also struggles to walk. He can only take a few steps before collapsing from exhaustion.
The rest… well, you can probably imagine yourself, dear reader.