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“Mommy isn’t really crying, just pretends crying,” – says 4-year-old Nina. “We play mommy-daughter, and now my Mommy is my daughter. I used to be her daughter, but she turned into a baby. She can’t walk and speaks like a baby, so softly – I don’t understand anything. I must give her water and wipe away tears, as if she can’t do it herself. And like a baby she can’t put herself to bed… We have such a game”.
Nina, the dear child, is being cunning; she doesn’t want to upset the foundation journalist. She’s tired of the tears of those around her! For the past year, all she’s heard from adults is how sorry they feel for her because her beloved mommy, who not long ago carried her in her arms, is now seriously ill and only quietly moans in despair.
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“My mom has turned into a baby. She can’t walk or talk.”
“Mommy isn’t really crying, just pretends crying,” – says 4-year-old Nina. “We play mommy-daughter, and now my Mommy is my daughter. I used to be her daughter, but she turned into a baby. She can’t walk and speaks like a baby, so softly – I don’t understand anything. I must give her water and wipe away tears, as if she can’t do it herself. And like a baby she can’t put herself to bed… We have such a game”.
Nina, the dear child, is being cunning; she doesn’t want to upset the foundation journalist. She’s tired of the tears of those around her! For the past year, all she’s heard from adults is how sorry they feel for her because her beloved mommy, who not long ago carried her in her arms, is now seriously ill and only quietly moans in despair.
Nobody knows what fate has in store for him! Zhanna’s muscles are gradually dying, bringing her closer to a dreadful end.
37-year-old Zhanna Kenchkhadze is suffering from a terrible illness. She has muscle atrophy. Once a vibrant and lovely young woman, raising her daughter and nurturing dreams of a bright future, now finds herself confronted with a harrowing diagnosis – her muscles are gradually dying, bringing her closer to a dreadful end.
The situation is dire, worsening with each passing day. Strength is slipping away from her; life is slipping away…
“Zhanna’s mom is seriously ill herself. She needs surgery to remove a kidney, but she can’t. Who will look after her daughter while she’s in the hospital, who will care for her when she can’t walk?
“I love it when Mom isn’t crying.”
It’s good that not all people are devoid of conscience. For two years now, all the responsibilities of the family have fallen on the shoulders of a young man – Zhanna’s brother. He’s barely holding on, but to give up would mean letting everyone down: his sick sister, his dear niece, and his ailing parents. There are no words to describe what is happening in this family!
– Malkhaz, no one but you can tell us about the horror you are going through.
Malkhaz (Zhanna’s brother): Often, through immense efforts, I have to restrain tears and not show it. Nina is so fragile and sensitive that she startles at every cough from my sister and asks, “Mommy isn’t dying, is she?”
“For four years now, I’ve been carrying my sister in my arms. She’s like a candle, flickering and fading away before my eyes.”
– How did all this begin?
Malkhaz: It all started four years ago when Zhanna was pregnant. She started having weakness in her legs. But she attributed it to pregnancy and didn’t pay attention. Then the beautiful Nina was born. My sister felt weak, and her state of mind was terrible – her husband left her. But let’s not talk about it. Everyone has their own conscience and their own path! Nina was just a little one when Zhanna’s knees gave way, but she didn’t think much of it. Zhanna thought she was just tired. She didn’t tell anyone about it – not me, not her parents. Then it started happening to her more frequently, and when she couldn’t stand up on her own anymore , that’s when she spoke up. We took her to the doctor, got a diagnosis, and started treatment… But the treatment didn’t yield any results. Zhanna is getting worse and worse with each passing day.
– What’s going on with her? How the disease is progressing, and is there any way to fight it?
Malkhaz: Her muscles are slowly giving out. I don’t know how to put it in simpler terms. Two years ago, she became unable to walk and had to use a wheelchair. But she could still handle the wheelchair, and her hands were still working. Then weakness set in her hands, and now she can’t even lift medicine to her mouth. After that, it became hard for her to talk. She can’t get out all the words. And recently, she started forgetting how to swallow. Every sip of water could be her last – she might choke. And the most dreadful part is, there’s no salvation from this disease. The only thing we can do is use medication to keep her current condition stable so that it doesn’t get worse.
‘Take the teddy bear in your hands, Mom, you can do it…’
– My God, how difficult it must be for both you and her. Does she understand and realize everything?
Malkhaz: Yes, she understands everything, and it causes her immense suffering. She cries all the time. When she can’t call for us, or we don’t understand what she wants, she starts sobbing. It’s so hard to watch that! My lively sweet sister, was always so cheerful, helping everyone…
“Now Zhanna can’t even drink water on her own.”
Nina (4-year-old): Don’t listen to my uncle… Mom is fine – she plays with me, and she won’t die! When she cries, I give her my toys, and she stops crying! It’s our little game!
Malkhaz: Of course, my joy, mommy is playing with us! I hope this “game” continues for a long, long time.
– One thing is the disease that destroys you morally, but the other is the way you live. Zhanna, Nina, you and your parents are crammed into this one room with damp walls and blown-out windows. You don’t even have a bathroom.
Malkhaz: Our income is a social allowance and my sister’s pension. The parents look like elderly people, but they are not yet of retirement age. Mom is 57, and Dad is 60. I’m 34. After dressing and feeding my sister in the morning, I rush to work at the quarry, earning money for medications. Everyone at home is unwell, and everyone needs medications. I found a tough job but it is close to home. When my help is needed, I must rush back home. Recently, Zhanna choked and collapsed from her chair. I rushed home, picked her up, sat her down, gave her medication, and rushed back to work. There’s no one to help, and sometimes it feels like the sun has set forever for our family. Only Nina brings us back to life.
“Zhanna can’t even bring the medicine to her mouth.”
– And what about you and your parents?
Malkhaz: I have a stomach ulcer, my mom has kidney disease, she needs surgery now and I don’t know how and I don’t know how to split myself in two. Who to leave my sister with, what to do with both mom in the hospital and my sister at home… and there’s no one to leave the child with. And my dad has a heart condition. How he still endures, watching all our suffering , I don’t know…
Nina: I believe in God too! Even though I haven’t seen Him. And I don’t believe in Santa Claus anymore. You know why? I wrote him a letter. Well, not me, but my uncle. I asked him to write that I want a teddy bear in snow color and a doll kitchen with little pots… and you know what he brought me? Candy, and just a few pieces! Either he can’t read or he made a mistake. And then, so I wouldn’t cry, my uncle bought me a doll. I play with it now.
– Maybe, your letter just didn’t reach Santa Claus. What else do you want?
Nina: I want pretty things for a girl, hairpins, ribbons, a beautiful dress. I also want a teddy bear in snow color. And I want my mom to talk to me normally, not like a baby. And I want her not to cry, and nobody to cry. In our kindergarten, all the kids cry, and at home, the grown-ups do too! I’m the only one who doesn’t cry, neither at kindergarten nor at home!
– Malhaz, what could lighten your heavy burden?
Malkhaz: I don’t know how possible it is, but if you could help us arrange the bathroom, I would be happy. Bathing Zhanna in the room where we all sleep and eat is simply impossible, especially in winter. We also need medications for my sister, for mom, dad, and me… we need groceries… and I don’t know what else. I’m sorry, I can’t even think straight. Support, even with a warm word, is important for me too. I’m doing everything possible for them. Sometimes I even think it’s a good that I didn’t get married. But maybe it would have been easier; my wife would have supported me.
If you are willing to visit the family and help them in person, here is their address: Mtskheta Municipality, village Kvemo Nichbisi.
Every time you can help someone, just do it, and rejoice that God answers someone’s prayers through you!
We are sure that all together we will manage to save this family from imminent death.
Please don’t forget to repost our story. Let your friends know about the grief of this family! It’s extremely important!
Friends, there is one more request: if you know about the misfortune of a neighbor or friend do a godly deed, drop us an email at: office-fsp@fsp.ge
– In Bank of Georgia GE64BG0000000470458000
– In TBC Bank GE15TB7194336080100003;
– In Liberty Bank GE42LB0115113036665000
You can also transfer money from our website: Bank of Georgia (e-commerce), TБC Bank (GeoPay), Liberty Bank (PayGe), PayPal
It is also possible to transfer money from ExpressPay, TBCpay, and PayBox (OPPA) terminals. Find our Fund under “Charity” section (you can read more about rights and responsibilities of the Fund following the link https://goo.gl/GY2Gus).
We have already helped thousands of disadvantaged people! Let’s support this family too! And who knows, maybe someday we ourselves will need the help of strangers! Life is always unpredictable!
Little Nina is happy that she and her mom have many new friends. It makes her feel calmer.
“Grandma used to not let me sleep with mom,” says 4-year-old Nina. “She said mom’s bed is small and we won’t fit together, and you can’t push mom. It’s good that you brought a big bed, and I can sleep with mom. I make sure mom takes all the medications you brought. I also make sure my new teddy bear and doll eat and drink on time.”
Smart little Nina is glad that she and her mom Zhanna have so many friends now, so she feels calmer for her sick mom. Many of you came to help Zhanna Kenchkhadze, who was completely immobilized by muscular atrophy, and Zhanna’s whole village supported her too.
“This doll only gets salad from me, so she doesn’t gain weight. But she asks me to share sausages with her.”
Nina (4 years old): When I wake up in the morning, I kiss mommy on the nose, and cheek, and neck, and tell her that I love her. And mommy is happy that I’m with her, she looks into my eyes and kisses me. And grandma had surgery on her kidney. And we got new windows installed, look: in this room, in the bath, and in the kitchen. And grandma got a big new gas stove, and I got a toy kitchen.
“Grandma got a big gas stove, and I got a toy kitchen.”
– So many news from you, Ninochka! Natia, how do you feel after the surgery? Is it hard for you to do household chores?
Natia (Zhanna’s mother): I am much better! The sick kidney drained all my strength, I would tire from simple tasks, couldn’t even get up in the morning. So the family let me go to the hospital for a week, my husband and son looked after Zhanna. I’m so grateful to all of you for helping our family, I love you all so much! Life would be hard without kind people.
Nina: I know who those people are—the Chernovetskyi Fund! They sent me my teddy bear, and doll, and shoes, and jacket, and velvet dress…
“Andria saw me in the garden in this dress and said I was beautiful. Grandpa and Uncle Makho say the same thing too.”
– Nina, you mentioned last time that you wanted ‘showing-off’ things. Now you have everything beautiful. So, where are you going to show off?
Nina (rolls her eyes, smiles mischievously): In the kindergarten in front of Andria. He’s my friend. He already liked the dress and shoes, which means he liked me (smiles). Or if I want to go to Georgian dancing or for a walk, I should have beautiful clothes, right?
– Sure!
Nina: The toy kitchen is also good. Grandma gives me real food from her kitchen: apples, potatoes, bell peppers. I chop them finely with this plastic knife and make a salad for the teddy bear and dolls. Whoever doesn’t eat gets dragged by the hair.
Nina: “You sent me an obedient teddy bear, he eats everything I cook, and sleeps when I tell him to. He also likes listening to my rhymes.”
As for me, I love yogurt, matsoni, buckwheat, sausages, dumplings, and juice. And Mom loves sausage. When the Chernovetskyi Fund gave grandma money, she went and bought all of this at the store.
Natia: We bought vitamins for Zhanna , and heart medication for me. We have a new gas heater. You came in winter, you saw how much snow we have here. These PVC windows are the best salvation from our frosts. Now both my Zhannochka and the baby will be warm. I’m impressed by the extent of the help: I thought only the bath was supposed to have windows installed during the project, but you replaced them in all the rooms.
Natia: “For so many years, we’ve been stuck, without money, unable to even provide comfort for our sick daughter. I was thrilled that you managed to solve the issue of windows and doors at once.”
Natia: “PVC windows are just what we need for the snowy winters in Nichbisi.”
Nina: Oh, quiet! Mom wants to say something. Otherwise, we won’t hear her!
Zhanna (struggling to speak and saying it with difficulty): “Thank you so much. I’m happy. I love you.”
– Zhannochka, we love you and your entire family and wish you all the best health and everything!
Natia: My daughter’s mood is lifting. It was greatly because of the fact that many people came to visit us. They comforted, cheered her up, hugged, offered help. After your project, everyone learned about the plight of my Zhanna, and new opportunities emerged. For years, we couldn’t do anything without money, we couldn’t even provide appropriate conditions for our sick daughter.
Natia: “My Zhanna is feeling better, so many people have given her hope.”
Many then wondered how to help my Zhanna. The village made a decision—to send Zhanna to Turkey for examination. My Zhanna received new hope, a new motivation. Lord, help my Zhanna, and along with her, help all those who are ill and suffering. Thank you, Lord, for generously rewarding all the caring and compassionate people, filling their lives with great joy and happiness! It’s a very emotional moment for our family, seeing funds contributed by strangers, villagers coming, Zhanna’s classmates…
Nina: Everyone loves me with Mom too. They brought me waffles, candies, and cookies. And when Mom isn’t crying, I’m very happy, you know?
– Can you show me how happy you are?
Nina: This happy: I jump on the new bed like this! (She jumps.) I can do it with the teddy bear too. I also learned two new rhymes—about clocks and a rooster…
“I’m happy and that’s why I jump!” (She jumps.)
“A good big bed. Now I sleep with mommy.”
– We adore you, you’re our favorite sweetheart!
Natia: During the project, our municipality promised to provide Zhanna with a new wheelchair. Not electric, but more comfortable than her current one. Zhanna is struggling with this wheelchair; her sides ache because the seat has sunk. They said that as soon as they receive the new wheelchairs, they’ll take Zhanna for a fitting so she can choose one that’s comfortable and suitable for her. We’re waiting and hoping for the best.
Mom Zhanna and her little girl—you always think about them—beautiful, wonderful, and vulnerable—together. Zhanna’s sad story, battling muscular atrophy, tugs at the heartstrings, and there’s always worry for little Ninochka, who’s just 4 years old. Her adulthood is still far away, yet help is needed every day! Together, we can provide this family with peace of mind and safety.
Our problems are nothing if compared… Here are true misfortunes, in front of your eyes! Just thank the Lord for what you have. You are the happiest person in the world! Remember this and help those in need.
Unfortunately, problems of this and other families do not end here and now… Therefore, from time to time, look through the stories of unhappy people on our website, talk to them. Every time you dial the Phone of an unhappy person, God is blessing you! For sure! Go on helping these families! This is the best service to the Lord!
Friends, there is one more request: if you know about the misfortune of a neighbor or friend do a godly deed, drop us an email at: office-fsp@fsp.ge
Your kindness is a chance for yourself to be happy!
Friends, thanks again to each of you!
– In Bank of Georgia GE64BG0000000470458000
– In TBC Bank GE15TB7194336080100003
– In Liberty Bank GE42LB0115113036665000
You can also transfer money from our website: Bank of Georgia (e-commerce), TБC Bank (GeoPay), Liberty Bank (PayGe), PayPal
It is also possible to transfer money from ExpressPay, TBCpay, and PayBox (OPPA) terminals. Find our Fund under “Charity” section (you can read more about rights and responsibilities of the Fund following the link https://goo.gl/GY2Gus).
Let’s believe that helping others, we take care of our own souls and draw closer to Lord through the suffering that we share with them!
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