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The thing is that 13 years ago little girl Nini was born with a terrible disease – spinal amyotrophy.
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Charity Number: One call saves a life!
Phone number:
0901200270High in the mountains at the pass that
connects Tbilisi to Kakheti, in the dense forest grove there is a lost village
of Patanajali. People here are very poor; they are content with little things,
and God forbid if a serious disease enters their house.
That’s how the Rostiashvili have been
living for more than ten years in a depressing state and constant fear. The
thing is that 13 years ago little girl Nini was born with a terrible disease –
spinal amyotrophy. This insidious disease chained the child to a wheelchair:
atrophied muscles, paralyzed feet, almost no ability to speak, but still the
girl retained her mental ability. This means that Nini is aware of her helpless
and painful condition, which certainly torments her wounded and sensitive soul!
Frequent attacks of suffocation,
turning into a piercing cough and fainting, have become an integral part of the
life of this innocent sweet girl.
Reading these lines, many of you may
have felt a tingling of compassion for the child in your heart. Now imagine
what it must be like for her mother, who holds the suffocating body of her own
child at least once a week!
46-year-old Asmat Rostiashvili is a
true heroine who carries the heavy cross of fate with honor, and if Nini is
still alive, it is certainly thanks to the warm caring mother’s hands!
We talked to
Asmat about her family, her child, her needs, and what our Foundation can do
for little Nini:
– Asmat, tell me
please, how do you manage to take care of a child, living in terrible
poverty?
Asmat: I have dedicated my life to my
girl! Yes, she’s ill! Yes, she is absolutely helpless, but she is my daughter
and I have to do everything to make her live as long as possible. It is very
difficult to care for a sick person in such terrible living conditions, with
such a meager material income, but there is nothing else to do. I have to live
on my wits and deprive myself of all simple things… just to help my daughter
breathe and save her from death…
– Does she have a lot of choking
fits?
Asmat: Once or twice a week… I call
the ambulance from the regional center, but the child may die while the brigade
reaches our village. So I have learned to take urgent measures. We have tubes
for sanitation, oxygen supply and an inhaler. All this was presented in Tbilisi
clinic, where Nini stayed two years ago. Now it is enough, but I am afraid of
thinking about tomorrow!
– And have you
asked for help from the municipal authorities?
Asmat: I applied many times with a
request to help somehow with the repair works in the house… Our house is very
old and it can fall apart at any moment. But they only promise…
– And this is another burden for
you?
Asmat: our house used to be solid, but
now it is in complete disrepair. Going upstairs is a risk for life; the stairs
can collapse and the ceiling can fall onto our head. Here we huddle in this
small room on the first floor, with no water, gas, or bathroom. We have neither
funds nor strength to repair it. My husband, the father of Nini, is actually a
disabled person. He has had multiple surgeries on the stomach. He is constantly
walking huddled up, and his ulcer hurts. I’m taking care of him too. What else
can I do?
– What do you do for living?
Asmat: I have a disability pension for
my daughter and a tiny social allowance. Thank God we receive this money! I’ve
heard that cash assistance has been suspended for many families in need. I feel
sorry for them. It is so difficult to survive nowadays, why doesn’t the
government understand it? Or maybe it can, but doesn’t want to?
– Did you try to take Nini to school?
After all, socialization is very important for her.
Asmat: We tried, but the child
couldn’t cope with her emotions. When she saw other children running around she
was hurt, besides she cannot speak articulately, so she felt ashamed… But I
do classes with her at home. I’ve taught her to write and read, and to count
and draw. The child is very sensitive. Once she told me: “Why do you need
a daughter like me, you are only suffering with me. We both
suffer…”
–
All your dreams are related to your daughter, right?
Asmat: That’s right. I was told that
there is a vaccine which costs lots of money, but it can help my daughter
regain her feet. I don’t know if that’s true, but either way, we’re never going
to get it. The course of treatment costs about a half a million lari. And we
even cannot find money to buy bread. All the time we live in fear – either the
child is sick, or my husband is in pain, then the pipe would burst or the leaking
ceiling would need repair. That’s how I live in constant anxiety.
– I’m
going to talk to Nini, and you will help me so that she doesn’t get
embarrassed, okay?
Asmat: Oh, the girl really wants to
communicate, although she gets embarrassed by her slurred speech.
– Nini,
what are you dreaming about?
Nini (13 years old): I have a
dream (note: she paused to think)… to go like everyone does and not to have
seizures… I want my mom to lay the table and…. so that we often receive
guests!
– And what do you
like most of all?
Nini: I like to draw. I have
watercolors, but they’re running out, but my mom said she’d try to get new
ones.…
– I have seen your pictures and I
found out that you like to paint birds.
Nini: I love birds. You see, this is
my parrot. I even talk to him. Now I want to draw a firebird, it’s all so
golden and beautiful… It works wonders, I believe it (note: she smiles).
– And do you want to go, or rather
“ride” in a wheelchair, to school?
Nini: The road is bad… but I still I
don’t want to. There my head starts spinning and I lack air in there. I want to
be with my mom more.
– And what would you like to have at
the moment?
Nini: Oh, I dream of a laptop. I would
learn English, read stories, communicate with other children, it would be more
fun…
– Nini, we wish
you the fulfilment of your dreams, as well as health and good mood. We will
always be with you!
What do
people think, passing by someone else’s trouble? “Someone will help
them” or “They are strong and can handle anything”. It is
not true… People who are passing by shift their responsibility to the others.
It is a vicious circle… And only time does not listen to anyone and does not
ask, it just passes… But if one person shows a good example, others will
repeat! So please, be this kind person!
Dear readers, dear
fathers and mothers, help little Nini and her family in the difficult struggle
with the insidious fate! They believe in you and wait for a miracle!
You can deposit money to
our Fund account to buy medicines, hygiene products, food, household things and
appliances: GE15TB7194336080100003 or GE64BG0000000470458000 (purpose: Nini
Rostiashvili). You can also transfer money from our website.
You can as well transfer money from
the terminals of Nova Technology, TBCpay and ExpressPay. Find our Fund in
“Charity” section. (You can learn about the additional rights and
obligations of the Fund by following the link https://goo.gl/GY2Gus).
Not all of us can do great things. But
we can do small things with great love! Let God save you!
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