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Each epileptic seizure could be the last for Giorgi It is impossible to watch the agony of Giorgi, Nini and their mother Megi without tears. It is impossible to get to know them and not go crazy with worry. Only a mother can endure so much – a guardian angel sent by God.
Megi: My son has a full set of serious illnesses: epilepsy, cerebral palsy, autism. My son has experienced clinical death four times. Do you know how many times people suggested that I get rid of Gio and start living? They tried to convince me to send him to an orphanage or to a special institution for intellectually disabled children. Could you do that? I couldn’t. Could you get rid of your child, whom they saved from the clutches of death four times?
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Each epileptic seizure could be the last for Giorgi
It is impossible to watch the agony of Giorgi, Nini and their mother Megi without tears. It is impossible to get to know them and not go crazy with worry. Only a mother can endure so much – a guardian angel sent by God.
Megi: My son has a full set of serious illnesses: epilepsy, cerebral palsy, autism. My son has experienced clinical death four times. Do you know how many times people suggested that I get rid of Gio and start living? They tried to convince me to send him to an orphanage or to a special institution for intellectually disabled children. Could you do that? I couldn’t. Could you get rid of your child, whom they saved from the clutches of death four times?
Giorgi probably understands that if it weren’t for his mom, he wouldn’t have been alive for a long time.
– When did you notice unusual behavior in Giorgi?
Megi: He was born perfectly healthy. At the age of two, he had a false croup, and from that day on, I haven’t known a peaceful life. The seizures were so severe that he turned black, stopped breathing, and lost consciousness. Then it was even worse – he fell into a coma! In the Tskaltubo hospital where we were, they gave up on him. They told me and my now-deceased husband Nugzar, “Consider him dead.” My husband was on the verge of collapsing, and I rushed in, stormed into the intensive care unit, demanding an oxygen mask. I sat by his side until my boy opened his eyes. But after that coma, he became completely different. His development halted, and his left hemisphere was damaged. Giorgi gradually stopped walking and talking, he began having seizures, and there was a loss of coordination.
– What happens to Gio during an attack?
Megi: It’s better for you never to see this. He collapses in convulsions. His arm, leg, head hit the floor. Then, for a short while, it stops. It’s impossible to stop it if I don’t call the ambulance. It’s good that I learned how to bring him back from the brink before the doctors arrive! Each seizure takes years of my life. The fact that I’m talking to you right now and holding on is a miracle because inside, I’m completely empty and dead.
“A seizure can start at any second. He can be sitting calmly, and then suddenly end up on the floor in convulsions.”
Megi: Every day, I see how my son’s condition is getting worse. At the age of three, he used to speak many more words than he does now at the age of eleven. If we don’t get him an EEG and start him on new medications in time, I don’t know what nightmare our lives could turn into. I also need medications… But how can I survive on my disabled son’s pension? Maybe someone can advise me? He needs diapers, and new clothes. He has nothing to wear to his special school. You can’t give him medicine on an empty stomach. First, you have to feed the child, but there’s not enough money for groceries.
Giorgi has died in his mother’s arms several times, but she brought him back from the brink.
– I’ve been here for less than an hour, and Giorgi hasn’t left your side for a second. He’s either in your arms or asking for something.
Megi: It’s incredibly difficult. He requires constant care; he can’t even eat on his own. I have diabetes and epilepsy myself, but, believe me, I can’t even go to the doctor. You can’t leave him alone for long. Even when he’s at the special school, I’m on pins and needles because they’ve called me from school several times to say that Gio had a terrible epileptic seizure. You can’t imagine what I went through until I reached the school. That’s why I’m no longer living my own life; my life is all about Gio.
Giorgi doesn’t leave his mother’s side for a minute.
– Apparently, working is out of the question.
Megi: You know, I wanted to study and work. I wanted to build a career and make a life for myself.” I even studied at a university. But you see, God had other plans. I got married at 25, and Nini was born – she’s 19 now. My daughter was born with a rare condition – her pelvic bones lack capsules or “nests.” Walking is painful for her, and she limps severely. She needs to be operated on to get a prosthesis. As long as I’m alive, I will save my children, but I’m even afraid to imagine what will happen next.
– Nini, have you thought about what you’d like to do after you finish school?”
Nini: I want to find a job, like working as a consultant in a store, helping with weighing items or in the fruits and vegetables section. But I’m not sure how long I can stand on my feet before the pain starts. So, I think it’s better to look for a sedentary job for now. I would love to take manicure courses, but I don’t have the financial resources for it. It’s tough at home; I constantly witness my brother and mom’s suffering and it makes me nervous.
Nini always wants to cry when she sees what’s happening to her brother.
– Don’t you receive any social allowance?
Megi: The social service scored us high scores due to other people’s belongings. We are guests in this house, allowed to stay temporarily until the owners return from abroad. And we receive only 50 lari. You can’t even buy bread for a month with 50 lari. It’s outrageous! Medications cost 300 lari, diapers 200… As for food, sometimes neighbors or kind people bring us some. If I could leave my son with someone, I would work – day and night without weekends – to ensure the children have medications, clothes, and food…
– Do you know what’s driving me crazy?! Can’t the social service see your worn-out faces, your eyes filled with exhaustion?! Don’t they realize what can happen at any moment? And don’t they notice the simple bread and tomatoes for lunch? Or the torn tights? The broken gas heater and a table made from two chairs? And the fact that you don’t even have a television, like you’re living in the Stone Age?
Megi: It all depends on how you look at it. If you look with your heart you’ll see everything and understand us. People from our church help me with clothes and food when they can. You look at things that way, you have this divine mission to help others. A few years ago, the Fund gave us a bed because we were sleeping on the floor. But the social service doesn’t look at people and their suffering; they focus on material things.
For my sick child, lunch often consists of just bread and tomatoes.
– So, you bringing up your children alone?
Megi: My husband passed away 5 years ago. We were divorced, but he helped me a lot with Gio while he was alive. He stayed with him, fed him, took him for walks. I was working at that time. But when he died, it became very difficult. Really hard…
– Do you have parents or any close relatives?
Megi: My mother has diabetes, and my father has brain cancer. They are old and seriously ill. My mom is so worried that she can’t help. She can’t cope with Gio anymore. He’s already quite big, it is impossible to carry him.
Gio looks like an ordinary child, but only his mother knows how much he suffers, how he agonizes.
– Megi, I see it’s hard for you to talk, and Gio doesn’t seem to like that we’re bothering you. Let’s summarize our conversation. How can we help you?
Megi: I’m not ashamed to ask for help. Right now, we need your assistance as we need air. Please help us provide Giorgi with his medications. Gio’s pension and social allowance are not enough for food or medication. My Gio urgently needs the help of a psychologist, speech therapist, and rehabilitation. Please help us provide him with food and diapers. First, he needs an electroencephalogram, followed by a course of medication. I would ask for two warm jackets for my daughter and me for the winter. I’m also very afraid of our gas heater. It’s prehistoric and leaks gas. It’s not safe to use it. If we don’t die from epilepsy, we might be suffocated by the gas. I can’t even bring myself to ask for a TV or cabinets – I’m already asking for so much.
This gas heater could kill our family. And what difference does it make how we die, from the cold or suffocation?
Megi buried her face in her hands and started to cry. Gio didn’t like this; he was upset with us for bringing his mom to tears with our questions. He got upset with his mom – he dislikes it most in the world when his mom cries. Gio can’t get upset with the officials who won’t provide him with social allowance. He can’t be upset with the doctors who can’t treat him for free. Gio doesn’t know and can’t do many things. But we do know, and we can. We shouldn’t get upset; instead, we should help. We can unite and alleviate this suffering.
The family of Megi, Giorgi, and Nini have faced incredible hardships, and they can’t handle it all on their own. They won’t stay afloat for long, and they are running out of strength.
Remember, we do good not only for those in need but also for ourselves. We save them from perishing and help our souls find eternal life!
If you are willing to visit this family and help them in person, here is their address: Vazisubani, 4th microdistrict, 2nd block, building 10, apartment 109.
We never turn our backs on those we support because one–time assistance only offers temporary relief from their suffering. But what happens to this child afterward? Can you imagine what one-time assistance is like? It’s akin to rescuing a fish stranded on the shore, briefly dipping it in water, and then placing it back on dry land. You can provide ongoing support to this family by setting up a monthly donation through the Fund’s website.
Every time you can help someone, just do it, and rejoice that God answers someone’s prayers through you!
We are sure that all together we will manage to save them from imminent death.
Please don’t forget to repost our story. Let your friends know about the grief of this family! It’s extremely important!
Friends, there is one more request: if you know about the misfortune of a neighbor or friend do a godly deed, drop us an email at: office-fsp@fsp.ge
Our Fund’s accounts are:
– In Bank of Georgia GE42LB0115113036665000
– In TBC Bank GE15TB7194336080100003;
– In Liberty Bank GE42LB0115113036665000
You can also transfer money from our website: TБC Bank (GeoPay), Bank of Georgia (e-commerce), Liberty Bank (PayGe), PayPal.
It is also possible to transfer money from TBCpay, ExpressPay and PayBox (OPPA) terminals. Find our Fund under “Charity” section (you can read more about rights and responsibilities of the Fund following the link https://goo.gl/GY2Gus).
We have already helped thousands of disadvantaged people! Let’s support this family too! And who knows, maybe someday we ourselves will need the help of strangers! Life is always unpredictable!
Total expenses:
4415.64₾Left:
0.30₾